The Alzheimer’s & Parkinson’s Association
of the Treasure Coast
Local Dementia Specific Information. This current information may be modified, and many thanks to the Alzheimer's Association for sharing it with us.
National Links follow this.
Dementia Specific Long Term Care Facilities
Treasure Coast
For some individuals with Alzheimer’s disease or a related dementia, placement in a
long-term care (LTC) facility may be considered. This decision can be difficult and
emotional for both the individual with Alzheimer’s disease and the family/caregivers.
However, a long term care facility can offer the appropriate medical care, intensive
supervision, dementia-specific activities, assistance with activities of daily living in a
home like environment, and allow family and caregivers to focus on their personal
relationship rather than their direct caregiver role.
Ideally, planning for a move to a LTC facility should occur several months in
advance. This allows time to research facilities in your area, better understand the
services offered, address any financial issues related to paying for a LTC facility,
and what options best meet both family/caregiver needs and the individual needs of
the person with Alzheimer’s disease.
There are two main types of LTC facilities, assisted living facilities and skilled
nursing facilities. There are also adult family care homes, which are smaller in
nature and do not provide as many services.
Assisted Living Facilities:
An Assisted Living Facility is often referred to as an ALF. An ALF provides housing, meals,
and one or more personal services for a resident.
To become a resident of an ALF, a person must meet state mandated functional
criteria, such as being able to perform activities of daily living independently or with
supervision/assistance (i.e. bathing, toileting, or walking). An ALF resident cannot
be bedridden or require 24-hour nursing supervision. ALF’s often have many levels
of care from minimal to comprehensive to meet the needs of each individual
resident. Some facilities also offer dementia-specific units that provide services
aimed at meeting the unique needs of individuals with Alzheimer’s disease.
Dementia-specific care usually includes higher staff to resident ratios, staff
specifically trained in working with Alzheimer’s disease, dementia appropriate
activities, safe areas for residents to wander independently, and security measures
to prevent unsupervised wandering or elopement.
ALF’s are licensed and inspected by the State of Florida, and anyone touring the
facility should request disclosure of the most recent inspection documents to inquire
about any deficiencies. Although an ALF does not provide 24-hour nursing
supervision or total care, some ALF’s do have special Extended Congregate Care
licenses (ECC), Limited Nursing Services licenses, or Limited Mental Health
licenses to allow them to provide expanded health and mental health services not
normally provided in an ALF.
Residency in an ALF can be paid for privately or through a long term care insurance
policy. The State of Florida also offers a Medicaid Assisted Living for the Elderly
Waiver (resident must qualify for the waiver and the facility must accept the waiver)
which helps pay a portion of the monthly ALF cost, as well as offering some monthly
assistance paying for continence supplies. The Veteran’s Administration also offers
assistance to veterans and their dependents in paying for assisted living through the
Aid & Attendance Program. You may apply for Aid & Attendance by calling 1-800-
827-1000, by talking to your VA social worker if already receiving VA medical
benefits, or by going to your local Veteran’s Service Center (see offices below).
Skilled Nursing Facility: A Skilled Nursing Facility is often referred to as a SNF
(pronounced “sniff”) or a nursing home. A SNF provides nursing care, personal
care, custodial care and rehabilitation to individuals who have an illness, are
recuperating from surgery or an injury, or are medically fragile and require 24 hour
nursing supervision. Some SNF’s have specialized dementia units that offer a
higher staff to patient ratio, staff trained to work with individuals who have
Alzheimer’s disease, safe areas to wander, dementia appropriate activities and
security measures to ensure a patient does not wander or elope from the facility. All
SNF’s are licensed and inspected by the State of Florida. You can see a facility’s
most recent inspection, or view nursing homes on a “Nursing Home Watch List” by
going to www.floridahealthfinder.gov or by calling the Florida Agency for Healthcare
Administration at 1-888-419-3456. SNF’s that provide Medicare approved services
have their Medicare inspection/survey results posted on www.medicare.org.
SNF care can be paid for privately, through long term care insurance, Medicaid, or
by Medicare for short term inpatient rehabilitation or recuperation related to a recent
hospitalization of more than 72 hours. The Veteran’s Administration also has a
dementia specific unit in Broward County that is available to Veterans. To apply for
Medicaid, please call your local CARES office.
Adult Family Care Home: An adult family care home (AFCH) provides a full-time,
family-type living arrangement in a private home for up to five frail elders or people
with disabilities, who are not related to the owner. To qualify for an AFCH license,
the AFCH provider must reside in the same house as the residents.
A person can become a resident of an AFCH only if certain functional criteria are
met, such as being able to perform the activities of daily living (with supervision or
assistance) like eating, walking and toileting. A resident cannot be bedridden,
cannot require 24-hour nursing supervision, cannot have stage 3 or 4 pressure
sores, and must meet other criteria as described in Chapter 429, Part II, Florida
Statutes and Chapter 58A-44, Florida Administrative Code.
The AFCH provides housing, meals, personal services, health monitoring, and can
provide or assist in arranging for nursing services for the resident when needed, as
long as the resident's health does not require more care than can be provided.
Additional services can include arrangement of transportation to medical
appointments, maintenance of clothing, securing social activities and leisure
services, and arrangement for participation in religious activities if requested by the
resident.
Aging and Disability Resource Center:
The State Medicaid Managed Care Program provides community-based services,
Assisted Living and Nursing Home assistance to frail functionally impaired seniors
and disabled adults, age 18 and above at risk of nursing home placement. The
program assists clients to remain in their own homes or Assisted Living facilities.
The program also manages clients under Long Term Care Medicaid in a Nursing
Home. Clients must meet financial eligibility as determined by the Department of
Children and Families and functional level of care as determined by CARES.
Clients choose a Long Term Care Managed Care Plan through an enrollment
broker. The plan assigns a case manager to each client who will help develop a
care plan.
The Medicaid Long Term Care program is administered and managed by the
Department of Elder Affairs, Area Agencies on Aging, Department of Children &
Families, the Agency for Health Care Administration and four Managed Care Plans
which for PSA 9 include:
American Eldercare
Coventry Health Care
Sunshine State Health
United Healthcare
Contact the Area Agency on Aging Helpline at 866-684-5885 for more
information and to receive a screening and begin the eligibility process for
benefits under the Medicaid Managed Care Long Term Care Program.
Veteran’s Service Centers:
Martin County
435 SE Flagler Ave
Stuart, FL 34994
772-463-2846
(Fax) 772-221-2312
Okeechobee County
462 Highway 98 North
Okeechobee, FL 34972
863-763-6441
St. Lucie County
St. Lucie County Walton Road Annex Bldg.
1664 S.E. Walton Road, Suite 205
Port St. Lucie, 34952
772-337-5670
St. Lucie County Community Services Bldg.
437 N 7th Street
Ft. Pierce, 34950
If you have questions about resident rights, or would like to discuss concerns
regarding any long term care facility in Florida you can call the Florida
Ombudsman at 1-888-831-0404. The Ombudsman’s office investigates issues
related to complaints and patient care/rights within all licensed long term care
facilities in Florida.
By listing these Dementia-Specific Long Term Care Facilities in this resource guide,
the Alzheimer’s Association does not endorse or recommend any specific facility.
Being listed in this guide means that the facility has a secured unit for individuals
with dementia. You can locate more facilities online at our dementia specific
database www.communityresourcefinder.org. For questions or inquiries about these
facilities, you may want to visit www.floridahealthfinder.gov or
www.ahca.myflorida.com.
Assisted Living Facilities
Please Note that all Assisted Living Facilities who have an Extended Congregate
Care License will have [ECC] next to the name of the facility. All facilities accepting
Medicaid Waiver have an [M] next to the name of the facility. All facilities that offer
emergency and short-term respite care within 24 hours notice will have a [R]
next to their name.
* For facilities that have staff who speak specific languages, please see the
following letters next to the facility name: Albanian (A), Creole (C), Dutch (D),
French (F), German (G), Greek (GR), Hebrew (H), Italian (I), Philipino (PH), Polish
(PO), Portuguese (PG), Russian(R), Spanish (S),Turkish (T), Yiddish (Y).
Martin County
Allegro [R] (S)(PO)
3400 SE Aster Lane
Stuart, FL 34994
772-324-7558
(Fax) 772-463-2509
www.allegroliving.com
Amore Dementia Care [R] (S)(C)
1634 South Kanner Highway
Stuart, FL 34994
772-219-8989
Brookdale of Jensen Beach
1700 NE Indian River Drive
Jensen Beach 34957
772-225-1355
(Fax) 772-225-8037
Solaris Senior Living
860 SE Central Parkway
Stuart, FL 34994
772-287-9909
(Fax) 772-287-4014
St. Lucie County
Broadmoor Assisted Living [ECC][M][R]
200 Dixieland Drive
Ft. Pierce, FL 3498
772-468-7235
(Fax) 772-468-7076
www.broadmoor-alf.com
Horizon Bay (Brookdale)[R] (S)(C)
9825 South US Highway 1
Port St. Lucie, FL 34952
772-337-0084
(Fax) 772-335-2662
www.horizonbay.com
Lake Forest Park [M][R] (S)(C)
25th Street
Ft. Pierce, FL 34981
(Fax) 772-466-1938
www.lakeforestseniorliving.com
The Lynmoore at Lawnwood.
1550 N. Lawnwood Circle
Ft. Pierce, FL 34950
772-353-4756
(Fax) 772-461-6072
www.lynmoorelawnwood.com
The Palms of St. Lucie West [M] (S)(F)
501 Cashmere Blvd.
Port St. Lucie, FL 34986
772-344-7441
(Fax) 772-344-7414
www.thepalmsofstluciewest.com
The Retreat at Abingdon (Brennity)
10685 SW Stony Creek Way
Port St. Lucie, FL 34987
(Fax) 772-345-2701
www.abingdon-tradition.com
Emergency Respite provided with MD approval
Abbiejean Russell Care Center LLC
700 South 29 th Street
772-465-7560
Skilled Nursing Facilities
Please Note that all Assisted Living Facilities who have an Extended Congregate
Care License will have [ECC] next to the name of the facility. All facilities accepting
Medicaid Waiver have an [M] next to the name of the facility. All facilities that offer
emergency and short-term respite care within 24 hours notice will have a [R]
next to their name.
* For facilities that have staff who speak specific languages, please see the
following letters next to the facility name: Albanian (A), Creole (C), Dutch (D),
French (F), German (G), Greek (GR), Hebrew (H), Italian (I), Philipino (PH), Polish
(PO), Portuguese (PG), Russian(R), Spanish (S),Turkish (T), Yiddish (Y).
Martin County
The Manors of Hobe Sound
9555 SE Federal Highway
Hobe Sound, FL 33455
.772-546-5800
(Fax) 772-546-6567
www.bortz.org
Solaris Healthcare Parkway
800 SE Central Parkway
Stuart, FL 34994
772-287-9912
(Fax) 772-221-7250
www.parkwayhealthrehab.com
Stuart Nursing & Restorative Care 772-283-5887
1500 Palm Beach Road
Stuart, FL 34994
772-283-5887
(Fax) 772-781-4563
Water’s Edge Extended Care
1600 SW Capri Street
Palm City, FL 34990
772-223-5863
(Fax) 772-283-7092
www.watersedgeextendedcare.com
St. Lucie County
AbbieJeab Russell Health Care Center
29th Street
Ft. Pierce, FL 34947
(Fax) 772-465-5619
www.abbiejeanrussellcarecenter.com
Fort Pierce Health Care……….772-464-5262
611 South 13th Street
Ft. Pierce, FL 34950
(Fax) 772-464-5022
Port St. Lucie Nursing & Restorative Care Center [R] (S)(C)
7300 Oleander Avenue
Port St. Lucie, FL 34954
772-466-4100
(Fax) 772-467-0094 & 772-489-8990
National Links:
Dementia:
Dementia Society of America
PO Box 600
Doylestown,PA 18901
800-336-3684
https://www.dementiasociety.org/definitions
Mayo Clinic - Dementia - Patient Care & Health Information
https://www.mayoclinic.org/diseases-conditions/dementia/diagnosis-treatment/drc-20352019
MedicineNet.com
https://www.medicinenet.com/dementia/article.htm
Dementia - Wikipedia
https://en.wikipedia.org/wiki/Dementia
Dementia - Medeline Plus
https://medlineplus.gov/dementia.html
Dementia Stages, Causes, Symptoms, and Treatments - WebMD
The Dutch Village Where Everyone Has Dementia - The Atlantic
Dementia and aging: Diary of a sufferer of microvascular disease.
Four Common Types Of Dementia - The Clinical Differences
Dementia Symptoms- Care for a Cure
Alzheimer's Dementia
http://www.alzheimersblog.org/Alzheimers
Dementia and Pets:
Human Animal Bond Research Institute
https://habri.org/research/healthy-aging#dementia
Bright Focus Foundation
https://www.brightfocus.org/alzheimers/article/alzheimers-disease-magic-pets
How Can Pets Benefit Alzheimer's Patients? - Alzheimers.net
http://www.alzheimers.net/2013-05-17/how-can-pets-benefit-alzheimers-patients/
How Does Pet Therpy Benefit Those With Dementia
https://www.verywell.com/how-does-pet-therapy-benefit-people-with-dementia-98677
How Animal Therapy Helps Those With Dementia
https://www.everydayhealth.com/alzheimers/how-animal-therapy-helps-dementia-patients.aspx
Alzheimer’s Disease:
National Institute for Aging
https://www.nia.nih.gov/health/resources-children-and-teens-about-alzheimers-diseasel
Scholarly articles for children and alzheimer's
Resources for Children and Teens about Alzheimer's Disease
https://www.nia.nih.gov/health/resources-children-and-teens-about-alzheimers-disease
Alzheimer’s Association SE Florida Chapter
3333 Forest Hill Blvd. Suite 101
West Palm Beach, FL 33406
800-861-7826
Helpline: 800-272-3900
http://www.alz.org/seflorida
Alzheimer’s Community Care
561-683-2700
Crisis Hotline: 800-394-1771
http://www.alzcare.org
Alzheimer’s Association National Office
225 N. Michigan Avenue – FL 17
Chicago, IL 60601
http://www.alz.org
Alzheimer's Foundation of America - AFA Teens
322 8t Avenue 7th Floor
New York, NY 10001
866-232-8484
info@alzfdn.org
https://alzfdn.org/young-leaders-of-afa/afa-teens/
Mayo Clinic
(sign up for Newletter)
http://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers-stages/art-20048448
Alzheimer’s Foundation of America
322 8th Avenue 7th Fl.
New York, New York 10001
866-232-8484
http://www.alzfdn.org
Alzheimer’s Disease Education and Referral (ADEAR) Center
PO Box 8250
Silver Spring, MD 20907
1-800-438-4380
http://www.nia.nih.gov/Alzheimers
Family Caregiver Alliance
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
1-800-445-8106
http://www.caregiver.org
Medicine Net.Com
http://www.medicinenet.com/alzheimers_disease/article.htm#
Alzheimer's Research Foundation
http://www.alzforum.org
American Health Assistance Foundation
Alzheimer’s Disease Research
22512 Gateway Center Drive
Clarksburg, MD 20871
800-437-2423
http://www.ahaf.org/alzheimers
The Fisher Center for Alzheimer’s Research Foundation
One Intrepid Square
West 46th Street & 12th Avenue
New York, NY 10036
1-800-259-4636
http://info@alzinfo.org
HBO – The Alzheimer’s Project
Films
http://www.hbo.com/alzheimers
Alzheimer’s Prevention and Research Foundation
6300 E. El Dorao Plaza Suite 400
Tucson, AZ 85715
http://www.alzheimersprevention.org/contact_us.htm
Dementia of the Alzheimers Type
Behave Net
7 Hidden Dementia Signs
http://behavenet.com/dementia-alzheimers-type
Regenerative Medicine Network
http://behavenet.com/dementia-alzheimers-type
Scholarly Articles About Alzheimer’s Treatment
https://scholar.google.com/scholar?q=alzheimer%27s+disease+treatment&hl=en&as_sdt=0&as_vis=1&oi=scholart&sa=X&ved=0ahUKEwjw-KudmdTJAhVF4SYKHR3lDckQgQMIOTAA
Latest Treatment Options – Alzheimer’s Association
227 North Michigan Avenue Floor 17
Chicago, IL 60601
800-272-3900
http://www.alz.org/alzheimers_disease_treatments.asp
Alzheimer’s Research Forum
http://www.alzforum.org
Alzheimer’s Foundation
322 8th Avenue 7th Floor
New York, NY 10001
866-232-8484
http://www.alzfdn.org/donatepopup.html
Alzheimer’s Stages: How the Disease Progresses
Mayo Clinic
13400 East Shea Blvd.
Scottsdale, AZ 85259
480-301-8000
http://www.alz.org/what-is-dementia.asp
Early Stage Dementia Care – Best Care For Patients a Home
Hospice of the Valley
602-530-6900
http://www.hov.org/palliative-care-dementia?gclid=CjwKEAiAhaqzBRDNltaS0pW5mWgSJADd7cYDjQz27GCb82h4vL13rSA-wNtlQ6O8TfCdfzovZVi-8RoCy57w_wcB
Alzheimer’s Disease – Treatment & Care
WebMD
1207 Peachtree Street NE
400 Colony Square Suite 2100
Atlanta, GA 30361
http://www.webmd.com/alzheimers/guide/alzheimers-disease-treatment-care
NIH Senior Health: Alzheimer’s Disease – Treatments
888-346-3656
http://nihseniorhealth.gov/alzheimersdisease/treaments/01.html
Special Care Dentistry Association
Dementia specific dental issues
http://www.emergencydentistsusa.com/alzheimers-dental-care
Goldman-Sachs - Alzheimer's - Search for a Cure
https://websitebuilder.godaddy.com/builder/edit/desktop/329f1e87-647f-4943-8948-29cf4f9aa90f
Boldly Fighting Alzheimer's - Advancements In ResearchAd
Parkinson’s Disease:
Movement Disorders and Neurorestoration Program (University of Florida)
https://movementdisorders.ufhealth.org/for-patients/clinics/parkinsons-disease-center-of-excellence/
National Parkinson Foundation
1501 NW 9th Avenue/Bob Hope Road
Miami, FL 33136
1-800-327-4545
http://www.parkinson.org
Parkinson's Chat Room
http://www.healthfulchat.org/parkinsons-chat-room.html
Parkinson's Disease - DBS for Parkinson’s Disease
National Institute of Neurological Disorders and Stroke
Boldly Fighting Alzheimer's - Advancements In Research
American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, NY 10305
1-800-223-2732
apda@apdaparkinson.org
Parkinson Alliance
PO Box 308
Kingston, NJ 08528
http://www.parkinsonalliance.org
Michael J. Fox Foundation for Parkinson’s Research
Church Street Station
PO Box 780
New York, NY 10008
1-212-509-0995
http://www.michaeljfox.org
Muhammad Ali Parkinson Center and Movement Disorders Clinic
St. Joseph’s Hospital & Medical Center
350 West Thomas Road
Phoenix, AZ 85013
602-406-3000
http://archsolteam.com/portfolio/muhammad-ali-parkinson-center/
Parkinson’s Action Network (PAN)
1025 Vermont Avenue NW
Suite 1120
Washington, DC 20005
http://www.parkinsonsaction.org
Parkinson’s Disease Foundation (PDF)
1359 Broadway
Suite 1509
New York, NY 10018
1-800-457-6676
http://www.pdf.org
The Parkinson’s Institute and Clinical Center
675 Almanor Avenue
Sunnyvale, CA 94085
1-800-655-2273
http://www.thepi.org
Advanced Parkinson's Disease
https://www.duopapro.com/about-duopa?cid=ppc_ppd_duopafull_hcp_ggl_bv_1168
WE MOVE (Worldwide Education & Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
1-212-875-8312
http://www.diseaseinfosearch.org
Bachmann-Strauss Dystonia & Parkinson Foundation
Fred French Building
551 Fifth Avenue at45th Street
New York, NY 10176
1-212-682-9900
http://www.dystonia-parkinsons.org
Lundbeck, Inc.
Parkinson’s Disease – Mayo Clinic
13400 East Shea Blvd.
Scottsdale, AZ 85259
480-301-8000
http://www.treatmentforparkinsons.com/?gclid=CjwKEAiAhaqzBRDNltaS0pW5mWgSJADd7cYDASMqdUHNTxZLioNRoVM3ad65UrMObMhqvWteplHo4RoC6FPw_wcB
PBNI Parkinson Treatment
Neuroscience Institute
855-775-1923
http://www.treatmentforparkinsons.com/?gclid=CjwKEAiAhaqzBRDNltaS0pW5mWgSJADd7cYDASMqdUHNTxZLioNRoVM3ad65UrMObMhqvWteplHo4RoC6FPw_wcB
Parkinson's Disease: 17 Early Signs, Symptoms & Treatment
Parkinson's Disease Center
https://www.medicinenet.com/parkinsons_disease/index.htm
Parkinson’s Disease Center: Symptoms, Treatment
Web MD
1207 Peachtree Street NE
400 Colony Square Suite 2100
Atlanta, GA 30361
http://www.webmd.com/parkinsons-disease/
Parkinson Disease – National Library of Medicine
PubMed Health
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0024544/
Parkinson's Disease Center: Symptoms, Treatments, Causes, Tests ...
https://www.webmd.com/parkinsons-disease/default.htm
Amyotrophic Lateral Sclerosis:
What is Amotrophic-Lateral Sclerosis?
A Life Story Foundation
11161 East State Road 70 Suite 110-12
Bradenton, FL 34202
941-840-1506
https://www.alifestoryfoundation.org
ALS Net
ALS TDI
300 Technology Square Suite 400
Cambridge, MA 02139
https://www.als.net
Amyotrophic Lateral Sclerosis Fact Sheet
Mayo Clinic
13400 East Shea Blvd.
Scottsdale, AZ 85259
480-301-8000
http://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/basics/definition/con-20024397
Amyotrophic Lateral Sclerosis – Wikipedia
https://en.wikipedia.org/wiki/Amyotrophic_lateral_sclerosis
Overview – Amyotrophic Lateral Sclerosis MDA
Muscular Dystrophy Association
222 S. Riverside Plaza Suite 1500
Chicago, IL 60606
800-572-1717
https://www.mda.org/disease/amyotrophic-lateral-sclerosis/overview
Amyotrophic Lateral Sclerosis – Facts About Symptoms
Medicine Net (Part of Web MD)
http://www.medicinenet.com/amyotrophic_lateral_sclerosis/article.htm
What is Amyotrophic Lateral Sclerosis ?(ALS, Lou Gehrig’s Disease)
Web MD
1207 Peachtree Street NE
400 Colony Square Suite 2100
Atlanta, GA 30361
http://www.webmd.com/brain/understanding-als-basics
Are Toxins in Seafood Causing ALS, Alzheimer’s, Parkinson’s ?
Discover Magazine
800-533-6644
http://discovermagazine.com/2011/may/22-seafood-toxins-causing-als-alzheimers-parkinsons
Study Says Brain Trauma Can Mimic ALS
Then New York Times
http://www.nytimes.com/2010/08/18/sports/18gehrig.html?_r=0
ALS Association
2175 K Street NW
Suite 1050
Washington, DC 20005
1-202-407-8580
http://www.alsa.org
Myasthenia Gravis:
Myasthenia Gravis Foundation of America
355 Lexington Avenue 15th Floor
New York, NY 10010
1-800-541-5454
http://www.myasthenia.org
Muscular Dystrophy Association
National Headquarters
3300 East Sunrise Drive
Tucson, AZ 85718
1-800-572-1717
www.mda.org
National Organization for Rare Disorders
www.rarediseases.org/info/contact.html
Online Support Groups
http://www.mdjunction.com
Myasthenia Gravis – Tests and Diagnosis
http://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/basics/tests-diagnosis/con-20027124
Treat Myasthenia Gravis
Patient Care America
11555 Heron Bay Blvd.
Coral Springs, FL 33076
954-473-4717
www.pcacorp.com/myastheniagravis
Myasthenia Gravis – Mayo Clinic
13400 E. Shea Blvd.
Scottsdale, Arizona 85259
480-301-8000
http://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/basics/definition/con-20027124
Myasthenia Gravis – Wikipedia
https://en.wikipedia.org/wiki/Myasthenia_gravis
Myasthenia Gravis – Fact Sheet
www.ninds.nih.gov
Huntington’s Chorea:
Chorea and Huntington’s Disease
International Parkinson and Movement Disorder Society
555 East Wells Street Suite 110
Milwaukee, Wisconsin 53202
414-276-2145
http://www.movementdisorders.org/MDS/About/Movement-Disorder-Overviews/Chorea--Huntingtons-Disease.htm
Huntington’s Disease- Wikipedia
https://en.wikipedia.org/wiki/Huntington%27s_disease
Huntington’s Disease – Genetics Home Reference
A service of the U.S. National Library of Medicine
http://ghr.nlm.nih.gov/condition/huntington-disease
Huntington’s Disease – Mayo Clinic
13400 East Shea Blvd.
Scottsdale, AZ 85259
480-301-8000
http://www.mayoclinic.org/diseases-conditions/huntingtons-disease/basics/definition/con-20030685
Huntington’s Disease – Read About Treatment Options
MedicineNet,com
http://www.medicinenet.com/huntington_disease/article.htm
What Causes Huntington’s Disease? - MedicineNet
http://evolution.berkeley.edu/evolibrary/article/medicine_05
Lundbeck Inc.
Four Parkway North
Suite 200
Deerfield, IL 60015
1-866-337-6996
http://www.chroeamatters.com
Huntington’s Disease Society of America
505 8th Avenue Suite 902
New York, NY 10018
1-800-345-4372
www.hdsa.org
CBS Special on Huntington’s Chorea
U-Tube Video
www.youtube.com/watch?v=65xf1olEpQM
Multiple Sclerosis:
MS Lifelines
http://Mslifelines.com
http://www.mslifelines.com
Mayo Clinic
13400 E. Shea Blvd.
Scottsdale, Arizona 85259
480-301-8000
www.mayoclinic.org
National Multiple Sclerosis Society
800-344-8867
http://www.nationalmssociety.org
Multiple Sclerosis –Wikipedia
https://en.wikipedia.org/wiki/
Medline Plus
https://www.nlm.nih.gov/medlineplus/
Multiple Sclerosis – Early Symptoms and Signs
http://www.medicinenet.com/multiple_sclerosis_ms/article.htmle.htm
MS Association of America
375 Kings Highway North
Cherry Hill, NJ 08034
856-488-4500
http://mymsaa.org
Multiple Sclerosis – Hope Through Research
www.ninds.nih.gov
National Institutes of Health
9000 Rockville Pike
Bethesda, MD 20892
301-496-4000
http://www.nih.gov/
Get Involved – National Multiple Sclerosis Society
800-344-4867
http://www.nationalmssociety.org/Get-Involved
Caregiving:
Alzheimer’s Disease Education & Referral (ADEAR) Center
PO Box 8250
Silver Spring, MD 20907-8250
800-438-4380
www.nia.nih.gov/alzheimers
Alzheimer’s Association
225 North Michigan Avenue Floor 17
Chicago, IL 60601
800-272-3900
www.alz.org
Alzheimer’s Foundation of America
322 Eighth Avenue 7th Floor
New York, NY 10001
866-232-8484
www.alzdn.org
Eldercare Locator
800-677-1116
www.eldercare.gov
National Institute on Aging Information Center
PO Box 5087
Gaithersburg, MD 20898-2225
800-222-2225
www.nia.nih.gov/health
Adult Day Care Services
National Adult Day Care Services Association
877-745-1440
www.nadsa.org
National Respite Locator Services
www.respitelocator.org
National Association of Professional Geriatric Care Managers
520-881-8008
www.caremanager.org
Hospice
American Hospice Foundation
202-233-0204
www.americanhospice.org
National Association for Home Care and Hospice
202-547-7424
www.nahc.org
Hospice Foundation of America
800-854-3402
www.hospicefoundation.org
National Hospice and Palliative Care Organization
800-658-8898
www.caringinfo.org
Medicaid
877-267-2323
www.medicaid.gov
Program of All-Inclusive Care for the Elderly (PACE)
800-772-1213
www.medicare.gov/nursing/alternatives/pace.asp
Social Security Disability Income
800-772-1213
www.socialsecurity.gov
State Health Insurance Assistance Program (SHIP)
www.shiptalk.org
Department of Veterans Affairs
877-222-8387
www.va.gov/health
National Council on Aging
Benefits Checkup
202-479-1200
www.benefitscheckup.org
Centers for Medicare and Medicaid Services (CMS)
7500 Security Blvd.
Baltimore, MD 21244-1850
800-MEDICARE (800-633-4227)
www.medicare.gov
Joint Commission (Evaluates Nursing Homes, etc.)
630-792-5800
www.qualitycheck.org
www.joincommission.org
American Association of Retired Persons (AARP)
601 E Street NW
Washington, DC 20049
888-687-2277
www.aarp.org/family/housing
Assisted Living Foundation of America
1650 King Street, Suite 602
Alexandria, VA 22314
703-894-1805
www.alfa.org
National Center for Assisted Living
1201 L Street, NW
Washington, DC 20005
www.ncal.org
National Clearinghouse for Long-Term Care Information
Administration for Community Living
Washington, DC 20201
202-619-0724
www.longtemcare.org
Dementia Treatment:
The Dementia Engagement and Empowerment Project (DEEP)
www.dementiavoices.org.uk
Support and Advocacy for Dementia
http://www.dementiaallianceinternational.org/
Dementia Action Alliance
http://www.daanow.org/living-fully-with-dementia-words-matter
ACT on Alzheimer’s
http://www.actonalz.org/
Summer Camp for Kids with Alzheimer’s
http://www.formemory.org/
Alzheimer’s and Dementia
http://alzheimers.about.com/
Dementia Treatment Overview
http://www.webmd.com/alzheimers/tc/dementia-treatment-overview
Treatments for Dementia
https://www.dementia.org/treatment
Resources for Children and Teens About Alzheimer's Disease